I've been away from work for quite sometime now and some of my friends have asked me how I spend my time. I always say, "it depends on how I feel." And although this is true, I realize how hard it is for others to understand how one day I can feel pretty decent and the next day I feel horrible. So...let's say I have four types of days: A, B, C, and D
- An A day is my least symptomatic. On these days, I can spend time with the kiddos teaching them all day, watching TV, or browsing the internet and actually forget there is anything wrong with me! I can do some 'normal' things like shopping. Unfortunately, since my neuropathy began, I have had less and less A days.
- A B day is a good day. Breathing takes some effort, but I am generally in good spirits about the whole thing. I can ride in the car comfortably, and I can shop with the help of my wheel chair.
- A C day is not fun. On these days, I feel under the weather, and it seems like my body is rubbing my face in the fact that I have lung cancer. I can leave the house if I push myself, but I'd rather not. Breathing is work, and sometimes I need to manage related side effects with additional medication.
- A D day really sucks. I won't leave the house, and I will rarely leave the bed. The worst part of these days is that I can rarely get comfortable. I feel like I have the flu. It takes a lot of effort to breathe, and I'm just plain miserable.
While I just stopped taking the prednisone again and deal with the neuropathy, my distribution of days has been roughly:
- A=0%
- B=50%
- C=30%
- D=20%
- Doctors appointments
- Calls to insurance companies
- Lung cancer research and forum participation
- Napping, teaching, social networking, blogging, loving on my kiddos, my hubby, and my pets
It is frustrating that I don't feel good enough to be more productive. But right now, my job is to rest and let my body try to fight this thing. If cancer has a silver lining, it is the ability to nap at will! :)
Love you all and truly mean it and God loves you too,
Shanna xoxoxo
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